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alljoy2u
Posts:3
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Posted:08/22/2008 10:03 AM |
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Dear Friends and Family,
It just breaks my heart to know of the painful journey that Adam, the two-year-old son of my friend and colleague, has had in his short little life. I pray that you will act as you are led by the Lord's promptings in your heart.
I have never participated in a fundraising event, but I am honored and humbled to work on this one. It would mean so much to me if you would pray for little Adam and his mom, Cathy. It would mean so much to the entire team if you could find it in your heart to contribute to this cause and help me in this effort. Please check out my website:
http://www.active.com/donate/nfphilly2008/angelinamarie
Thank you for forwarding this information to as many that you can think of that might be open to joining me in prayer and, hopefully, in fundraising.
If you would like to see what Cathy goes through with Adam on a weekly basis, please check out their website:
http://www.caringbridge.org/visit/adamk
Again, thank you very much for your generosity in every way: thoughts, prayers, words of encouragement to Cathy, sharing this information with others, and donations.
"All the darkness in the world can not extinguish the LIGHT of a single candle." St. Francis of Assissi
SHINE! Matthew 5:16
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dawnofday
Posts:2
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Posted:09/11/2008 9:29 PM |
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Hi,
I can't explain why but for some reason was drawn to your subject. Maybe it's b/c my prayers always include the sick children and I wanted to include this 2 year old into my daily prayers. As I read line by line, my heart kept "racing" like I was meant to read this for whatever reason. Certain words just "caught me" then....I saw the one word....the one two letter word that is dear to my heart...NF.
I try to write this without tearing up cause you see...I, too, have NF. Now I am not a 2 year old nor a child but a 37 year old woman who has lived in the shoes of NFers for 14 years. I, however, have not had any seriousness of this disorder but have many friends who have and who live the worst of NF. I have my few complications but I wake up everday thankful for my life. It's not to say that I don't have bad times, emotionally or physically but.....
My family and I just returned from an NF family camp this past weekend and I have met the greatest of friends and people. The commonality I share with these people is so dear to me simply b/c we all known what we go through...no matter what spectrum of the NF scale we are at.
My children so far have not had any signs/symptoms of NF. They are 3 and 11. Although, we have had our share of health scares. But....
Anyways, this is not meant to be about me but this dear little boy. I send my heartfelt deepest prayers and blessings for dear Adam. I pray that God's healing hands is over him. I pray that the fundraiser will go well and that maybe someday their will be a cure. I pray that one day someone will solve the NF puzzle.
May Adam's stars always be shining brightly above him and may his angel always be resting on his shoulder.
With all my heart and prayers.
God Bless.
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